The Marshall-Smith Syndrome Organization of the USA, Inc. was founded in 2023 by two mothers of children with MSS. Our focus has been, and always will be, the health and happiness of our children. We hope the legacy of MSS-USA can continue our mission for generations.
Jennifer is a co-founder of MSS-USA. Her son, Jeremy, was born in 2012 and diagnosed with Marshall-Smith Syndrome at the age of 2. Jennifer is a Registered Nurse and brings a passion for improving research and standards of care for children and adults with MSS.
Courtney is co-founder of MSS-USA. Her son, Reece, was born in 2020 and diagnosed with Marshall-Smith Syndrome at 3 weeks old. Courtney has a Bachelor's degree in business administration and brings a passion for family support and building awareness of MSS.