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    • Home
    • About MSS
      • What is MSS?
      • Life with MSS
      • Treatment & Management
      • Symptoms & More
      • The NFIX Gene
    • Resources
      • Newly Diagnosed?
      • Media & Publications
      • Articles & Research
      • Helpful Links
      • MSS Patient Registry
    • Rare Disease Day
    • Advocacy
    • Support MSS-USA
    • Photo Gallery
    • Memorial
  • Home
  • About MSS
    • What is MSS?
    • Life with MSS
    • Treatment & Management
    • Symptoms & More
    • The NFIX Gene
  • Resources
    • Newly Diagnosed?
    • Media & Publications
    • Articles & Research
    • Helpful Links
    • MSS Patient Registry
  • Rare Disease Day
  • Advocacy
  • Support MSS-USA
  • Photo Gallery
  • Memorial
The Marshall-Smith Syndrome Association of the United States

in loving memory

Below you will find photos celebrating the lives of U.S. children and adults with MSS who left this world too soon. May memories of these wonderful angels float freely through our minds like dandelion seeds on the breeze.

Despite his short time here on Earth, Connor touched everyone that had the honor of meeting him. He was such a happy boy, and I was blessed to be his Mommy. Connor made me a better person, and I would not be who I am today if not for him. I love you my sweet boy."


Shannon, Connor's mother

Connor Loughnane

Derek DeJonge

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