Our Mission
Provide support, advance research, and raise awareness for individuals with Marshall-Smith Syndrome and their families.
Support
Building meaningful connections through community groups, family resources, and nationwide meetups.
Advocacy
Raising awareness and understanding through shared stories, data collection, and community-led outreach.
Research
Driving equitable, patient-centered research through advisory boards and partnerships with leaders like NORD.
Real Experiences. Real Impact.
Every MSS story is deeply personal, yet together we form a powerful collective voice. These reflections highlight how support, advocacy, and research efforts are making a real impact on families across the country.
By sharing your experiences, our community can help others be seen, understood, and empowered to navigate their own MSS journey.
“By being a part of MSS-USA, I’m creating the change I want to see in the world”
Jen Gilcrest
“Knowing we have healthcare providers on our board that are willing to be a part of something bigger to bring awareness for MSS, gives me hope.”
Jennifer Franko
Support MSS-USA
Your donation helps us provide hope, resources, and support to those impacted by Marshall-Smith Syndrome.
Contributions are used where they are needed most and may support research, outreach, advocacy, or community programs.
Donate TodayMSS-USA is a 501(c)(3) tax-exempt public charity with the tax # (EIN) 93-2278840. Consult your tax advisor to confirm the deductibility of your gift. We are unable to direct donations to individual families or guarantee their use toward a specific initiative.
Giving With Trust and Clarity
Our partnerships with Candid, NORD, Benevity, ColoradoGives365, and the PayPal Giving Fund help us reach more families, collaborate with national organizations, and sustain essential research and support programs.
Click below to view our profiles
Help Raise Awareness
Show your support for individuals and families affected by MSS by representing our official merchandise. Each item is designed to spark awareness, inspire conversation, and strengthen our growing community.
Every dollar of profit is reinvested directly into our programs, research initiatives, and advocacy efforts, helping us expand resources, increase visibility, and move our mission forward.
