MSS is rare, but there is strength in numbers! We strive to provide support and connection for families online and through organized meetups.
MSS-USA hosts formal advisory boards to assure equity and perspective in our research efforts. Our partnership with the National Organization of Rare Disorders (NORD) will open new doors for researching MSS.
We foster advocacy by sharing stories of our journeys, formally gathering information that will provide better understanding and increase awareness of MSS.
The Marshall-Smith Syndrome Organization of the USA, Inc. was founded in 2023 by a group of MSS rare moms and other professionals who saw the need for more accessible resources in our community.
Our executive board is made up of a diverse group of family members and professionals who are passionate about MSS-USA's mission and goals.
MSS-USA is a 501c(3) nonprofit that is supported by generous donors and 100% of funds are used to support the mission and goals of the organization to benefit people living with Marshall-Smith Syndrome and their families.
Your generous donation can help us fund our mission to improve the lives of children and adults living with Marshall-Smith Syndrome through family support, research, and advocacy.
MSS-USA is 501(c)(3) tax-exempt public charity. For additional information, please refer to our "Support MSS-USA" page.
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