Our Mission
Provide Support
Advance Research
Advance Research
MSS is rare, but there is strength in numbers! We strive to provide support and connection for families online and through organized meetups.
Advance Research
Advance Research
Advance Research
MSS-USA hosts formal advisory boards to assure equity and perspective in our research efforts. Our partnership with the National Organization of Rare Disorders (NORD) will open new doors for researching MSS.
Foster Advocacy
Advance Research
Foster Advocacy
We foster advocacy by sharing stories of our journeys, formally gathering information that will provide better understanding and increase awareness of MSS.
leadership and financial transparency
Our History
The Marshall-Smith Syndrome Organization of the USA, Inc. was founded in 2023 by a group of MSS rare moms and other professionals who saw the need for more accessible resources in our community.
Financial Transparency Updated March 25th, 2024
MSS-USA is a 501c(3) nonprofit that is supported by generous donors and 100% of funds are used to support the mission and goals of the organization to benefit people living with Marshall-Smith Syndrome and their families.
Help Our Cause
Your generous donation can help us fund our mission to improve the lives of children and adults living with Marshall-Smith Syndrome through family support, research, and advocacy.
MSS-USA is 501(c)(3) tax-exempt public charity. For additional information, please refer to our "Support MSS-USA" page.
