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    • Home
    • About MSS
      • What is MSS?
      • Life with MSS
      • Treatment & Management
      • Symptoms & More
      • The NFIX Gene
    • Resources
      • Newly Diagnosed?
      • Media & Publications
      • Articles & Research
      • Helpful Links
      • MSS Patient Registry
    • Rare Disease Day
    • Advocacy
    • Support MSS-USA
    • Photo Gallery
    • Memorial
  • Home
  • About MSS
    • What is MSS?
    • Life with MSS
    • Treatment & Management
    • Symptoms & More
    • The NFIX Gene
  • Resources
    • Newly Diagnosed?
    • Media & Publications
    • Articles & Research
    • Helpful Links
    • MSS Patient Registry
  • Rare Disease Day
  • Advocacy
  • Support MSS-USA
  • Photo Gallery
  • Memorial
The Marshall-Smith Syndrome Association of the United States

We must be treated as equals - and communication is the way we can bring this about


Louis Braille

A girl with MSS and blonde hair smiles while sitting with a bucket of sand on the beach.

Our MSS-USA family members in the media

Book

Article

Article

A photo of the cover of The View from Four Foot Two by Judi Markowitz

Judi Markowitz

December 23, 2013

'The View from Four Foot Two'

Sunbury Press, Inc.


Buy on Amazon

Article

Article

Article

An image of three stranded shopping carts blocking the accessible parking space at a store.

Judi Markowitz

January 23, 2023

'Dateline Detroit: Parking Lot Encounters of the Third Kind'

The Insider

Click to Read

Article

Article

Article

A photo of a woman with MSS laying on a hospital bed surrounded by people wearing surgical attire.

Judi Markowitz

October 17, 2022

'Dateline Detroit: Mom's in the OR, 

but its not a movie!'

The Insider

Click to read

Article

Article

Article

An image of a home Covid test laying on top of blue medical masks.

Judi Markowitz

October 4, 2022

"Dateline Detroit: Riding the Covid Rollercoaster"

The Insider

Click to read

Article

Article

Article

A woman with MSS sits in a wheelchair. Her mother stands behind her. Both are wearing sunglasses.

Judi Markowitz

September 6, 2022

'The Gawkers, The Talkers, the Smilers, and the Do-Gooders'

The Insider

Click to read

Article

Article

Article

A woman with MSS and her mother smile while they hold a golden apple.

Judi Markowitz

August 22, 2022

'The Pandemic and It's Unique Challenges for My Disabled Daughter'

The Insider

Click to Read

Article

Article

Article

A girl with MSS smiles at the camera with large, beautiful eyes. She has brown curly hair.

Children's Hospital Association

May 4, 2023

'Meet Phoenix: A Children's Wisconsin Champion'

childrenshospitals.org

Click to Read

Videos

Article

Article

A girl with MSS and her brother sit together on a rocky beach.

"Phoenix's Life with Marshall-Smith Syndrome"

Watch Phoenix and her family tackle the ups and downs of life with MSS. 


Don't forget to subscribe!

Watch on YouTube
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