• Home
  • About MSS
    • What is MSS?
    • Life with MSS
    • Treatment & Management
    • Symptoms & More
    • The NFIX Gene
  • Resources
    • Newly Diagnosed?
    • Media & Publications
    • Articles & Research
    • Helpful Links
    • MSS Patient Registry
  • Rare Disease Day
  • Advocacy
  • Support MSS-USA
  • Photo Gallery
  • Memorial
  • More
    • Home
    • About MSS
      • What is MSS?
      • Life with MSS
      • Treatment & Management
      • Symptoms & More
      • The NFIX Gene
    • Resources
      • Newly Diagnosed?
      • Media & Publications
      • Articles & Research
      • Helpful Links
      • MSS Patient Registry
    • Rare Disease Day
    • Advocacy
    • Support MSS-USA
    • Photo Gallery
    • Memorial
  • Home
  • About MSS
    • What is MSS?
    • Life with MSS
    • Treatment & Management
    • Symptoms & More
    • The NFIX Gene
  • Resources
    • Newly Diagnosed?
    • Media & Publications
    • Articles & Research
    • Helpful Links
    • MSS Patient Registry
  • Rare Disease Day
  • Advocacy
  • Support MSS-USA
  • Photo Gallery
  • Memorial

Helpful Links

Click the links below to explore more resources!
The MSS Research Foundation - NetherlandsN.O.R.D. - MSS PageNIH Genetic and Rare Diseases Info Center - MSSParent 2 Parent USA - support for parentsSibling Support ProjectCPIR - Overview of Early InterventionUnderstanding SSI -SSI for ChildrenMedicaid.gov - How to ApplyTomato Glasses - Great for low nose bridges

Copyright © 2023 Marshall-Smith Syndrome Organization of the USA, Inc. - All Rights Reserved.

Powered by GoDaddy

  • About Our Organization
  • Privacy Policy
  • Terms & Conditions

Cookies? Yummy!

We use cookies to analyze website traffic and optimize your website experience. By accepting our use of cookies, your data will be aggregated with all other user data.

DeclineAccept