Your generous donation will allow our organization to achieve our mission of providing support to families, advancing research, and fostering advocacy.
MSS-USA is a 501(c)(3) tax-exempt public charity. See below for more information.
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Our Initial Fundraising Goals
Patient Registry
Our benchmark goal is to raise $15,000 to fund an IAMRARE patient registry through the National Organization for Rare Disorders. Click the link below to learn more about the IAMRARE program and how it will benefit individuals with MSS.
Family Meetups
Another goal we have is to raise money for costs associated with organizing and hosting a weekend-long event for families to come together and meet. Similar events are hosted by the MSS Research Foundation in The Netherlands, however international travel is not always an option for families who reside in the United States. We wish to host a family meetup at a location in the US on alternating years to the one in The Netherlands, so that families all over the world have more opportunities to build community.
Family Outreach
MSS-USA will use a portion of donated funds to cover various family support activities, such as welcoming new US families, celebrating milestones, encouragement during hard times, and more.
Thank you for supporting MSS-USA!
The Marshall-Smith Syndrome Organization of the USA, Inc. has been classified as a public charity and received a tax-exempt determination from the Internal Revenue Service under IRC Section 501(c)(3). Donors may deduct contributions they make under IRC Section 170. MSS-USA is qualified to receive tax deductible bequests, devises, transfers or gifts under Section 2055, 2106, or 2522.
You should expect to receive a donation receipt from MSS-USA that you can use for tax deduction purposes.
MSS-USA Tax Information
Marshall-Smith Syndrome Organization of the USA
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